tag:blogger.com,1999:blog-1757156933254635392024-03-12T18:50:54.297-07:00everything about this girlsarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.comBlogger28125tag:blogger.com,1999:blog-175715693325463539.post-73845028363549459962012-04-20T09:48:00.001-07:002012-04-20T09:48:53.422-07:00Curcumin Stains Be Gone!!!!Thought I'd share as Im very excited about this.<br />
Last week D got Am up in the morning and found she had thrown up in the middle of the night. He knew this because her sleeper, as well as, the 4 blankets she was sleeping with were covered in bright yellow Curcumin stains. They were already dry, so I didnt have much hope for getting them out, but did a quick search and found someone claiming dishsoap worked to remove curcumin. I doused the outfit and blankets in Seventh Generation dish liquid, rubbed the fabric together, and then washed them. When I pulled them out of the washer, the stains were noticeably lighter, but still there. I then tried putting zout on them, rubbing the fabric together and rewashed. D ended up putting in the dryer and I forgot to warn him about checking, but as it turns out, everything is 100% stain free. The worst of the blankets is white and light pink, and there is NO trace of any curcumin -- yey!sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com9tag:blogger.com,1999:blog-175715693325463539.post-51006464756011140492012-04-20T09:39:00.000-07:002012-04-20T09:40:37.231-07:00Over the bridge and through the traffic to Swedish ER we go!I dont know how I forgot our most exciting adventure of the past few weeks.<br />
While rushing to get ready for the QA egg hunt, D had a picture fall on his head and got a 2" gash from it.<br />
We couldnt tell how bad it was because there was SOOO much blood -- Ill spare the details except to say that head wounds bleed A LOT!<br />
D and I were taking bets on when our first trip to the ER would be, but that was with Max. D was the unexpected entry into the game.<br />
<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEisGihTxliipDZK_nIYB0N24gGQbHtCt6_kvygT7KDc5FTR3rSsyxctJjy3pRfh0nYLxok0FZDLScDMe9fGiPqQY5BVKTIqpLUezWPAZBG9ZQwa0rPzf0RP7MuMy5U7uEligOu7EmrMnHP3/s1600/IMG_5214.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEisGihTxliipDZK_nIYB0N24gGQbHtCt6_kvygT7KDc5FTR3rSsyxctJjy3pRfh0nYLxok0FZDLScDMe9fGiPqQY5BVKTIqpLUezWPAZBG9ZQwa0rPzf0RP7MuMy5U7uEligOu7EmrMnHP3/s640/IMG_5214.JPG" width="640" /></a></div>
Ok, 1 pic.sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com0tag:blogger.com,1999:blog-175715693325463539.post-86174375600844139402012-04-17T12:18:00.000-07:002012-04-17T12:18:11.435-07:00Egg Lovin Eggersim going to skip over the guilt of not posting for 2 weeks again and go straight to the good stuff.<br />
<br />
supplement wise we upped Am's ginko to 2x a day, and upper her curcumin to 1000 mg per pay.<br />
we havent noticed any change in energy or sleeping patterns, or any huge developmental changes.<br />
we have noticed Am is saying ee words much more often hiieee, and mommee<br />
-- before she could only say ahh sounds<br />
she's also talking more and trying to say more. sometimes i say words to her and i can see her trying to figure out how to imitate my mouth movements.<br />
she's also taken a BIG interest in books lately, and i can trust her to not rip or mouth paper pages<br />
<br />
we had our first consult with PT last week, (only had OT and SLP before) and PT provided us with some great exercises to get Am to push her weight back onto her legs to get to standing instead of pulling up with her arms. i've noticed a big jump in core strength since we started that.<br />
we should get Am's SPIO suit in the next week or two, and I think that will really help if it is long enough to go over her hips as I think her walking difficulty stems from her loosey goosey hip joints.<br />
<br />
the biggest development i noticed last week was during that PT session. we were making Am walk to the table to have a snack and she was tired and about done with working so hard.<br />
she alternated from me, to the PT, to Daniel to complain to each of us and in essence ask us to pick her up and take her over to the table. she has become quite assertive and vocal in letting us know what she wants, or doesnt want lately, but that was the first time i really saw her devising a scheme and targeting specific people to help her implement it -- i think its a big leap in reasoning on her part :)<br />
<br />
im still going back and forth on whether we should go get a formal neuro-dev evaluation and plan done soon. we are doing ok with everything we are doing now, and at some point she just has to be allowed to be a kid and have fun, but i also dont want to look back and think, we should have done more..<br />
<br />
anyhow, we are off to a fabulous spring, so i have dusted off my camera again and can share some kid lovin....<br />
<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBYqULZ5YG6A9Xpougv3KfOhBg4HHqq1W7AEU4gsc6nOxKeylioZOEMMnWsTP4xtsr1uu4MHrYdZ699LBrbarj13d_O-az0O6EgWpL6D6NkSw78gY2A4q-9Du5htVghHo-r_MzBuQ4S2uv/s1600/IMG_5274.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="425" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBYqULZ5YG6A9Xpougv3KfOhBg4HHqq1W7AEU4gsc6nOxKeylioZOEMMnWsTP4xtsr1uu4MHrYdZ699LBrbarj13d_O-az0O6EgWpL6D6NkSw78gY2A4q-9Du5htVghHo-r_MzBuQ4S2uv/s640/IMG_5274.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Happy Egg Dance at St Annes</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4l0DYj9v0J-F11_edBIN4uuNeAAz_oTEb7y1rYbfhwzHYT8SPfFS9r7sfQbjGGWHZxqiZmS4fKe16G47RBmDPxf_UPJdQmQ75N865-w-MTnxTOHx-41Zuj5506uDDCHyU7waoIqjUlRy0/s1600/IMG_5273.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4l0DYj9v0J-F11_edBIN4uuNeAAz_oTEb7y1rYbfhwzHYT8SPfFS9r7sfQbjGGWHZxqiZmS4fKe16G47RBmDPxf_UPJdQmQ75N865-w-MTnxTOHx-41Zuj5506uDDCHyU7waoIqjUlRy0/s640/IMG_5273.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Am wasnt so into the collecting eggs thing</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9GnkPZeQwnUR74M66bPGsCr64c47IP65D49KblG5h1Z5UrluYP4i1amJ-HB8cvBPPf1eGwyMM4JKAhzy2quCPkOb2cEpZT_PLPdvXcoxzWAJifgF8YANsAMbUHIj25K8k8PytqnGXZ84e/s1600/IMG_5267.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9GnkPZeQwnUR74M66bPGsCr64c47IP65D49KblG5h1Z5UrluYP4i1amJ-HB8cvBPPf1eGwyMM4JKAhzy2quCPkOb2cEpZT_PLPdvXcoxzWAJifgF8YANsAMbUHIj25K8k8PytqnGXZ84e/s640/IMG_5267.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Easter Party with Friends</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2pG8eYCzhK4tzk_OeyNwrPzD_8kKq-ObhkQArFoONdYVNArkl85EFMX-gA1DjdxYWuwvUsrUJfpFSwVH6O5UhWBFgX24Kv30d3decdMR-LRqXZt-5s2PYvuGlWNXW182JwChi2X5KVJtk/s1600/IMG_5243.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2pG8eYCzhK4tzk_OeyNwrPzD_8kKq-ObhkQArFoONdYVNArkl85EFMX-gA1DjdxYWuwvUsrUJfpFSwVH6O5UhWBFgX24Kv30d3decdMR-LRqXZt-5s2PYvuGlWNXW182JwChi2X5KVJtk/s640/IMG_5243.jpg" width="426" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Easter Party Apples :)</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUYQNEDHe-jlfH9pCVauDq0cHD0cXMsGVGrNAqOtZ82VLM7Xgs8hx82JkpEaJ6-515t7Ta3mxfisYn-H58NpT3I5UHIXwH68LR6clgm5_lt93Sq0UjclOBSMg35RTPN_NYeHxl4bXkBPcW/s1600/IMG_5222.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUYQNEDHe-jlfH9pCVauDq0cHD0cXMsGVGrNAqOtZ82VLM7Xgs8hx82JkpEaJ6-515t7Ta3mxfisYn-H58NpT3I5UHIXwH68LR6clgm5_lt93Sq0UjclOBSMg35RTPN_NYeHxl4bXkBPcW/s640/IMG_5222.JPG" width="640" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I love these pics because they are just sooo max.</td></tr>
</tbody></table>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com0tag:blogger.com,1999:blog-175715693325463539.post-16520078597654291462012-04-02T12:21:00.000-07:002012-04-02T12:21:22.389-07:00Vitametavegimin!!!!blogging is not good for my self esteem.<br />
i look at the date of the last entry and feel guilty every. time.<br />
the truth is, we are busy, and its not yet a habit, and i just forget to update, but i am determined to be more consistent as i just read through some past entries while looking for a particular pic of am and had quite the trip down memory lane.<br />
actually, my memory is TERRIBLE, so its almost like reading someone elses story :)<br />
<br />
anyways, im starting back up to school today and get to take lots of fun classes this quarter, so i am excited about that, but i should really be reading through 4 syllabuses right now instead of on here so quick synopsis:<br />
<br />
Week 1. we started Am on 1/8 tsp 2x p/d of nutrivene d about a month and a half ago<br />
Week 2. upped to 1/4 tsp 2x per day -- her full dose as we are ALmost up to a whopping 16 lbs!<br />
-- (sarcasm here folks, just found out that puts her between 0.0-0.1% on the growth charts)<br />
week <br />
Week 3. started 1/5 dropper of ginko in am<br />
Week 4. started 2/5 dropper of ginko in am<br />
Week 5ish 2/5's in am / 1/5 in pm, and a tiny bit of juice plus powder<br />
Week 6. just this past saturday started 1/4 tsp of Longvida Curcumin in the am, but i need to look and see if we can switch to afternoon as she tends to spit up more in the am, and this stuff stains like the dickens<br />
<br />
this past weekend, we stayed in mostly to work on IPT, if you dont know what that is, I'll spare you...<br />
ok, I wont, it's Intensive Potty Training -- Livin It Up Here in the QA.<br />
<br />
anyhow, this weekend Am said 3 new words, including a very clear mommy while I was passing her over to D -- v. happy about that one ;)<br />
<br />
The Curcumin is supposed to have an effect on language so I was hoping to see some change within a week or so.... Im hesitant to say Am's new words were LC based, but the timing is suspect!<br />
She has also started sideways cruising really well -- she can go down the whole length of the couch now and in general just feels more solid -- hopefully walking will be soon, but we still need to get an orthotic consult -- another thing to add to the list!<br />
We have plans to add or up about 10-15 more supplements, so will update as we do.<br />
<br />
<br />
In other catch up notes:<br />
<br />
We did the 3 day lockdown PT method with Max and it worked REALLY well!<br />
-- and then we had some backsliding, but all in all, max is such a champ and hes such a sweet sweet guy. his new thing is to take my face in his hands out of no where and whisper i love you. its honestly the best thing ever.<br />
after almost 9 years of living up here, I FINALLY found an awesome PCP for myself who is in practice with an NP who we met in the office and I am going to take Amelie to for a variety of reasons, but mostly thyroid related -- to be discussed in another post.<br />
ae successfully made it through another quarter of dental school and had some exciting new opportunities open up for D, also to be discussed later.<br />
after a month and a half of specialists and pins and needles, determined my vision loss was not caused by anything neurological and thus not indicative of an autoimmune disease -- hurrahh!!!<br />
<br />
im sure there's lots im forgetting so will update as my memory is refreshed, or as d refreshes it rather!sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com1tag:blogger.com,1999:blog-175715693325463539.post-74282777530479476672012-03-13T21:56:00.001-07:002012-03-13T22:07:52.399-07:00oh so long agoi cant believe its been so long since i last posted, and i cant believe how different am looks from those last pictures! our baby is definitely becoming a little girl with her own thoughts and attitudes!<br />
not much time to post now, but wanted to chronicle that we started am on nutrivene d about a week and a half ago after her being sick literally ALLLL winter long. shes also on antibiotics so its hard to tell what is what, but we have definitely seen an increase in her energy, her cold seems to be improving, and she is back to sleeping through the night again, (5 nights now, tho im super hesitant to mention and thereby jinx this good fortune ;)<br />
<br />
anyways some recent pics<br />
<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEga4pg0ZmpHzDeVnPv4r3NDtNjmIOM0_npIzuBA5wytVjyg7XiGvIx_TjT1fFaQ-jKjUe_FPsr2znz9J5sYesyYn9bl73sp5BHnzq9nb7PvC6AxHuvy3I1IM2P8qJAblh1f5-EGFgwf78RD/s1600/IMG_4577.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEga4pg0ZmpHzDeVnPv4r3NDtNjmIOM0_npIzuBA5wytVjyg7XiGvIx_TjT1fFaQ-jKjUe_FPsr2znz9J5sYesyYn9bl73sp5BHnzq9nb7PvC6AxHuvy3I1IM2P8qJAblh1f5-EGFgwf78RD/s640/IMG_4577.JPG" width="640" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsvo_K_6Uq74lAGstzFuiHn_4XIuSXKXQ-fvmsNJNH5-lzvx7NWe_L3TY96kbEAnr1XFuKyoKVg4yB4_MfslJAMEJ_e72qOI1yVAPuYpfWpjCr9sv6S9vCHU7hUSJUXVCCWwPNXmVkHpaB/s1600/IMG_4876.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="420" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsvo_K_6Uq74lAGstzFuiHn_4XIuSXKXQ-fvmsNJNH5-lzvx7NWe_L3TY96kbEAnr1XFuKyoKVg4yB4_MfslJAMEJ_e72qOI1yVAPuYpfWpjCr9sv6S9vCHU7hUSJUXVCCWwPNXmVkHpaB/s640/IMG_4876.JPG" width="640" /></a></div><div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"></div>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com0tag:blogger.com,1999:blog-175715693325463539.post-50425545671262259072011-11-23T09:48:00.000-08:002011-11-23T09:49:58.161-08:00most thankful fori dont have time to properly document all my feelings about the past 366 days, but i think i can pretty much sum up by saying what i am most thankful for this year is that my baby girl survived and is turning out to be the funniest, most determined, uplifting, social, and gorgeous girl i could have ever asked for.<br />
<br />
54 weeks ago, when we found out about amelies diagnosis i was so devastated; i could only think about what a horrible life she, and we, would have because of her T21. i was also paralyzed with fear over her medical prognosis and was convinced she wouldnt survive the heart surgery.<br />
not only did she survive, she came through surgery beautifully and since then has just become the most extraordinary/ joyful/ lovely little girl. we have met more strangers this past year because everywhere we go, her smile and infectious giggle draw people in.<br />
i not only love this little girl, i am completely in love with her and am so excited about all her birthdays to come.<br />
<br />
we'll have to figure out the timing for future birthday parties.<br />
this year, we kept it small, and gluten/ dairy free ;)<br />
<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgV7JZlKtsW68I0qZ4qc2qs2_t9fmUV3fxK4doSHGOSZcveB7OnAt4iGczjfBRW1arh1ZhV-Y-3rAL-9Z3TPy3ZMYfghcV5zOcwdonzJWaDTJiHTbuX-KmkrahuZZHLyNDb7cY7pU1R9GYz/s1600/IMG_3311.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgV7JZlKtsW68I0qZ4qc2qs2_t9fmUV3fxK4doSHGOSZcveB7OnAt4iGczjfBRW1arh1ZhV-Y-3rAL-9Z3TPy3ZMYfghcV5zOcwdonzJWaDTJiHTbuX-KmkrahuZZHLyNDb7cY7pU1R9GYz/s640/IMG_3311.JPG" width="640" /></a></div>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com0tag:blogger.com,1999:blog-175715693325463539.post-38059625605409122612011-09-21T14:20:00.000-07:002011-09-21T14:55:01.685-07:00fall of formaldehydethe kids and i picked up D last night and were immediately repulsed by the smell of sweet burning nastiness -- there really is no better way to describe it. apparently using a bone saw for 5 hours straight produces this odor of ungodliness and it permeates anything and everything.<br />
i wont go into details about what the man was doing, but i will say, that last night, for the first time in 14 years, i was truly grossed out by my husbands activities.<br />
<br />
fortunately i am not allowed to take pics of the mans activities, or you know i would be sharing with you all. instead i have some delayed photos of the kids gorgeousness<br />
<br />
<br />
<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinRJRZ4a7p1Zs0vMYTqrf6o61v6KXhX6wjYTs7na1TVvJ_iUvIVBlYCIgvifJDkZpbWtDK8y576CudQf_cgIEG7tnjNL3aA7RQF9veSqTkzRsrA62ZDcmD8S8id52IESo4wMMXSEpi6c4F/s1600/IMG_2236.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;">um, should we have a talk about two big contributors of dental caries in kids</a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhzVJMzvETffsbA-EvN3hNdFMYNiAezn5Zf_gPeJXPmAf26x87zZ1Dvjj-dGoA8iuvEePh75ao4W_Y9czX5-Fb4YTMsYE_EEEByAK7eXye-mIuCJgfE_E8_XyIKJz59XnYmAfcxUMC8Fcpw/s1600/IMG_2254.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="425" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhzVJMzvETffsbA-EvN3hNdFMYNiAezn5Zf_gPeJXPmAf26x87zZ1Dvjj-dGoA8iuvEePh75ao4W_Y9czX5-Fb4YTMsYE_EEEByAK7eXye-mIuCJgfE_E8_XyIKJz59XnYmAfcxUMC8Fcpw/s640/IMG_2254.JPG" width="640" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfAPJlpIiK8pUzs9I3Dhxp-HgRSRrkGNndi7saMcdqbbKJYdYc63eNXtni2ha_XFFKjAA8_FK5qNffds6SJuMyu1NBH_cjUXAcsz1W-MaQJkGCgQFrE5vQX5g7ExeFe-EndW7RJok3UkwN/s1600/IMG_2256.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="425" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfAPJlpIiK8pUzs9I3Dhxp-HgRSRrkGNndi7saMcdqbbKJYdYc63eNXtni2ha_XFFKjAA8_FK5qNffds6SJuMyu1NBH_cjUXAcsz1W-MaQJkGCgQFrE5vQX5g7ExeFe-EndW7RJok3UkwN/s640/IMG_2256.JPG" width="640" /> </a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEib-3CbnIsEobXM7g0gUh4gKduEF0bL6jaPVspwgQqwTF2ENNPVGmmlhgXKEgNAwqleSSCLium1czOe42xzgNgUyTiEab7LpBpqjyby-cYchIrKo4HafeO48nryrlvSK7FBJZnVXQs39Scy/s1600/IMG_2257.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEib-3CbnIsEobXM7g0gUh4gKduEF0bL6jaPVspwgQqwTF2ENNPVGmmlhgXKEgNAwqleSSCLium1czOe42xzgNgUyTiEab7LpBpqjyby-cYchIrKo4HafeO48nryrlvSK7FBJZnVXQs39Scy/s640/IMG_2257.JPG" width="640" /></a></div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTS6IAqCad2oJDvAsuZp4G7OVOe9m4jk9vtogP7FDzGOefuR1vlq9YITjQv1PudYRS-yLAgKsBp2S_rv_hBa7s45rOf26gPF2mP0D9-waeRqgxf_DYZCmUX09yJ3mUeThjgnm3oGBh4Yde/s1600/IMG_2238.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="425" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTS6IAqCad2oJDvAsuZp4G7OVOe9m4jk9vtogP7FDzGOefuR1vlq9YITjQv1PudYRS-yLAgKsBp2S_rv_hBa7s45rOf26gPF2mP0D9-waeRqgxf_DYZCmUX09yJ3mUeThjgnm3oGBh4Yde/s640/IMG_2238.JPG" width="640" /></a></div><div class="separator" style="clear: both; text-align: center;"> </div>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com0tag:blogger.com,1999:blog-175715693325463539.post-66037143293046209932011-09-16T09:47:00.000-07:002011-09-16T09:54:05.569-07:00a shout out to lucky number 13I was going to title this one, this is the face of 13 and post a pic of D and I together, but sadly, I cant find a pic of the 2 of us together that was taken in the past 2 years!<br />
not one i like anyway ;)<br />
<br />
today i have had the privilege of being married to the best person i know and my best friend for 13 years.<br />
in 7 more we'll have been married for 20 years and/or half our lives -- for some reason that makes me feel like, wow, we're old, and wow, we really have been married a loooonnnggg time.<br />
i have a terrible memory which i think precipitates my lack of awareness of time, so in general, i feel very much like that 20 year old girl who one day realized<br />
a. wow, D is really into me so he must not be gay<br />
b. he's kinda awesome, and arrogant, and hot (this was after he cut off the legolas locks and dyed them black)<br />
<br />
im so glad through the stupidity of my early 20's, i had the good sense to realize just how amazing this man, my husband is, and that he was, and is, a keeper<br />
<br />
since i cant find any recent photos, thought i would upload one from when the magic all began ;)<br />
<br />
<div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhLCeglDpvI_4SxvwJTatNDLwMqLdRG6PdzQ0xxnW5CEBEg_v4U7JYmg32ZqV5NQP5W9iX0sL-RJ0y8ZQlnUIT4BPDutACh40Ib9hmdFGmbYVoz_BmWJDO7UrdLsQrqMGyiYqtC6vn20Xz-/s1600/5688_102864313057192_100000008724440_75561_5121594_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhLCeglDpvI_4SxvwJTatNDLwMqLdRG6PdzQ0xxnW5CEBEg_v4U7JYmg32ZqV5NQP5W9iX0sL-RJ0y8ZQlnUIT4BPDutACh40Ib9hmdFGmbYVoz_BmWJDO7UrdLsQrqMGyiYqtC6vn20Xz-/s640/5688_102864313057192_100000008724440_75561_5121594_n.jpg" width="640" /></a></div>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com2tag:blogger.com,1999:blog-175715693325463539.post-1762251397554825472011-09-06T14:17:00.000-07:002011-09-06T14:22:48.142-07:00this is the face of two<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiskZQblm3-DwuD-DLbSbuucdCwTEOcSEkF27MkhjFHPNmCvJHuxCYuiEoKL279bc8e4s8L0pYQgJWdJ0ZiQbEKZLXEu4LbyjCT0K2bnzukT1TQj_oda6Qpo5M745sGnbfhrq-MOM977YO1/s1600/IMG_2395.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiskZQblm3-DwuD-DLbSbuucdCwTEOcSEkF27MkhjFHPNmCvJHuxCYuiEoKL279bc8e4s8L0pYQgJWdJ0ZiQbEKZLXEu4LbyjCT0K2bnzukT1TQj_oda6Qpo5M745sGnbfhrq-MOM977YO1/s640/IMG_2395.jpg" width="426" /></a></div><br />
i cant believe its been 5 weeks since i last posted -- i meant to be so very good about it really.<br />
and, i cant believe my boy is two.<br />
if its not already being done, someone really needs to do a study about how time literally, not theoretically, goes soooo much faster once you have kids.<br />
i can no longer keep track of what month it is let alone what date or day of the week.<br />
im serious, not exaggerating for effect -- does this happen to everyone when you have kids or is it just me?<br />
<br />
well in superquick wrap up style of the events i can remember:<br />
<br />
we all got sick with the plague/ super high fevers/ 5 trips to the drs... yet again!!!<br />
ugh...<br />
daniel actually graduated with his bs, so now he's ddbs soon to be ddbsdds, and then ddbsddsomfs :D<br />
this cracks me up, but no one else apparently<br />
daniel started dental school. in fact he's probably cutting into his first cadaver as i write <br />
my mom came to visit/ took care of us/ helped immensely with max's mistake of a second birthday party<br />
max kind of missed out on his actual birthday as he had a temp hovering around 103 and was completely lethargic, which if you know my boy, means it was really bad...<br />
went a little crazy with max's robot/dinosaur/animal dance party themed 2nd birthday party which ended up just being robot themed<br />
the official birthday party season continued and hopefully, now has ended ;)<br />
we found out my neice who is 5 months younger than me and has 4 young kids had a brain tumor and lesions, (which they successfully removed) and also has lung cancer<br />
went to the drs another 87 times -- good report from cardioloigst, passed 2nd hearing screen, (didnt do so well on the first) found out am has an astigmatism and will eventually need glasses, 3 miserable blood draws and monitoring for hypothyroidism, 2 trips to ped to make sure the plague wasnt turning into some sort of rsv for am, 2 year well check for max, annual check up for me, root canal for me, 2 more root canals for me, cleaning for d, bi-weekly slp/ ot/ pt<br />
-- lots of excitement in that area of our world, need a dr people, ask me!<br />
dinner with family whom we havent seen in forever :)<br />
starting applications for school<br />
taking first steps, (assisted, but bearing weight on those tiny legs is still a big deal ;)<br />
ate solid pieces of fruitaliciousness <br />
met some horses, and cool people too<br />
learned the hard way that it's absolutely imperative that i check max's pockets before washing any of his clothes<br />
<br />
thats all the power of recall i have for the moment<br />
lots and lots of pics to choose from since its been so long but we'll go with bday<br />
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the good news is that we have a lot of wonderful wonderful friends<br />
the bad news is that we dont have enough time to see them all, but still want/ try to<br />
and i dont seem to have enough energy to stack dates, of one kind or another, back to back<br />
i started getting sick, not to mention super cranky, again and was feeling badly that i was the only one in the fam who couldnt seem to keep up...<br />
<br />
and then we figured out that the reason the boy has been waking up at night was from night terrors<br />
<br />
and then we figured that at least part of these night terrors are due to his being overtired<br />
i think the other part is his very vivid and technicolor imagination which is currently filled with robots and a renewed interest in foofa from yo gabba gabba (hmmmm)<br />
so..... even tho the boy seems like a carbon copy of his energizer daddy, i guess it eventually hits him like it does me<br />
<br />
in other more exciting news:<br />
the boy continues to potty train himself despite our best efforts to the contrary<br />
am passed her hearing screen so no brain stem scan, yippidee :)<br />
now we just have the endocrinologist and ophthalmologist to contend with<br />
d is officially 4 weeks away from d school which begins with a and p<br />
-- im SO jealous!<br />
and......we have a mountain of to dos to get dones before then<br />
<br />
i cant seem to upload my camera pics at the moment -- need d to finish up his dang homework and get back to more important tasks like helping technology inept me -- so photos to comesarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com0tag:blogger.com,1999:blog-175715693325463539.post-76640592467463892492011-07-24T20:49:00.000-07:002011-07-24T21:15:38.210-07:00times they are a changinweekend in review<br />
<br />
drs<br />
first visit to the dentist -- smashing success, of course<br />
loss of blanket<br />
relapse of sickness<br />
completion of antibiotics<br />
twirl cafe fun <br />
sleep in and latte, (better than chicken soup)<br />
operation blanket recovery<br />
ummmm, lovely frozen yogurt treatiness<br />
park<br />
purposeful saying of dada added to repetoire<br />
full on army crawling and standing with assistance -- this girl is truly awe inspiring<br />
churchin and dancin with dudah<br />
napping<br />
le reve(ing) yum<br />
celebrating life<br />
wading pool and park<br />
showing of houses<br />
unparent initiated POOP in the potty people!!!!!<br />
our little boy is becoming a little man<br />
<br />
seriously, our life totally revolves around our kids now and it/ they rock(s)<br />
<br />
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</div>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com2tag:blogger.com,1999:blog-175715693325463539.post-81209235647198247882011-07-19T08:46:00.000-07:002011-07-19T08:51:05.568-07:00back to life. back to realitymy german, strong like bull immunity husband, who never gets sick, and refuses to take any medication when he does, brought home this vile plague of a cold thing that our whole family has been passing around for months now. at least that's what it feels like...<br />
<br />
AND, it included pink eye for the maximus which i am way grossed out by.<br />
i have been kept up at night with webmd searches about all the other vile things both my boys could contract and bring home.<br />
there was a note on one of the other preschool classes at m's school saying, 'your child may have been exposed to scabies'.<br />
SCABIES, really people??????<br />
so disgusting and nightmare inducing...<br />
<br />
anyhow, i finally feel like i may have turned the corner with this thing and am looking forward to getting back into the land of the living. i know my immune system is still compromised and i catch and keep (release, release body!) everything under the sun, but im surprised at how long D has had this thing.<br />
<br />
am wondering if this is to do with:<br />
a.) getting older<br />
b.) having kids<br />
c.) being in an incubator with 40,000 other people who are essentially, kids, and im sure not terribly hygienic<br />
<br />
in clinic they told him to act like everyone has hep or hiv, (cause of the needle pricks ya know) which i think is really good practice, but D told me the surprising thing was really how many people actually did/do.<br />
<br />
that little bit of wisdom will need to be d's attitude for the rest of his life now, but im afraid if this superbug/ plague thing is any indication, the rest of the fam will need to act as if too :(<br />
<br />
<br />
i dont have any correlating pics for you, (trust me you dont want to see) so instead ill give you these....<br />
<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwNlLKRdOMQbAUj1djWvqvpkkmjIvrZvNWzoZBJ6dKBoc7RZb5PAJv6F4ly93aqeskT-j7h8ZTbYo3ZY4tyQkbjTWVILGZUBaOr6vNdDbwC_rOUt_UXqAqOyq2ca4zWEwPw-cfnIDmSAat/s1600/26.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="256" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwNlLKRdOMQbAUj1djWvqvpkkmjIvrZvNWzoZBJ6dKBoc7RZb5PAJv6F4ly93aqeskT-j7h8ZTbYo3ZY4tyQkbjTWVILGZUBaOr6vNdDbwC_rOUt_UXqAqOyq2ca4zWEwPw-cfnIDmSAat/s640/26.jpg" width="640" /></a></div>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com0tag:blogger.com,1999:blog-175715693325463539.post-47238702457788060882011-06-30T20:09:00.000-07:002011-06-30T21:03:28.470-07:00new and improved and now tube free!i know, i know, i havent updated in so long, but we have been busy folks over here in the Q to the A.<br />
the dupuis household has been up to a lot, see if you can guess who did what :)<br />
<br />
taking all waking feeds by bottle<br />
pulling out am's ng tube<br />
taking ALL feeds by nursing or bottle -- oh hell to the yeah!<br />
undertaking massive house projects that we didnt have the extra time or boundless youthful energy to do, but that look great now if we do say so ourselves :)<br />
killing massive amounts brain cells from excessive paint fume inhalation<br />
making new friends<br />
repeating mama and baba<br />
guest lecturing at the University of Washington about non-disjuncture to genetics classes......and, killing it!<br />
losing all superglue scabs<br />
calling the police on some guy trying to break into the house while we were home<br />
being told you're supposed to call 911 for that<br />
jumping jumping jumping<br />
getting an a+ in recovering from OHS from the cardiologist<br />
tasting tasty things like pears and pizza<br />
planning massive remodels that cant be done for a while<br />
contemplating going back to work<br />
hosting animal dance parties<br />
farmers marketing with friends in juneuary (hate that term, but it's just too apt right now)<br />
contemplating going back to school<br />
realizing how much better life is post OHS and how happy and blessed we are :)<br />
<br />
not many pics for you cause my camera battery ran down and i just found the charger, so we'll go with cuteness over quantity<br />
<br />
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</div>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com5tag:blogger.com,1999:blog-175715693325463539.post-88046528102853216222011-06-19T20:55:00.000-07:002011-06-20T08:54:43.106-07:00this my boo<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj2GJ1misAaI7calVbbBsTGKBP4UIMa0yyox5Mqgw7j3nYvecN2B8_x20APE6Y-3NXpg6GZQ8oxs1ZL2NRHacuEWCRSjdV-BJsK7Db3qwlESb0jzlQTqLnXoxBB-OsSecs58pZrPPWAkVvd/s1600/af2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj2GJ1misAaI7calVbbBsTGKBP4UIMa0yyox5Mqgw7j3nYvecN2B8_x20APE6Y-3NXpg6GZQ8oxs1ZL2NRHacuEWCRSjdV-BJsK7Db3qwlESb0jzlQTqLnXoxBB-OsSecs58pZrPPWAkVvd/s640/af2.jpg" width="640" /></a></div><br />
this how she roll.<br />
in case ya'll didnt know, am speaks with a bit of an ebonic bent and frequently quotes rap lyrics<br />
she crazy. she throws in words like axed into everyday general conversation<br />
must be all the movin 92.5 she demanded to listen to in utero<br />
<br />
her momma speaks with a bit of a twang and frequently says ya'll. <br />
must be from being raised in <i>southern</i> california and our time in new york....that makes perfect sense.<br />
<br />
<br />
anyways, in am's words gotta say it was a good day, err, weekend rather<br />
<br />
we:<br />
learned our son might be a little racist...... but then again sikhs do carry knives<br />
were brought the most delectable chicken curry ever<br />
were brought the most delicious pastries and lattes in seattle<br />
had a playdate with max's sister girlfriend<br />
went to the park 482 times<br />
started a wee bit o potty training<br />
fed our girl 250 cc's by bottle, hey shorty its ur birthday<br />
got to celebrate the best dad in the hood<br />
didn't even have to use our ak<br />
gotta say it was a good day, err, weekend<br />
<br />
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</div>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com1tag:blogger.com,1999:blog-175715693325463539.post-49551157086914802442011-06-17T14:34:00.000-07:002011-06-17T14:36:55.717-07:00scrumdidilyumptiousnesswent to the cardiologists yesterday and she said am looked good :)<br />
<br />
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she heard a small murmur from the vsd backleaking a bit, but said there was a possibility that could resolve on its own. we get to cut her lasix back by half and, if all goes well, cut it out next week, which means we can potentially start starving her to make her take the bottle and get that tube out of her nose -- yey!<br />
<br />
today is d's last day of vacation and we havent really had a chance to take a break so today we walked all around the hood and went to the yummy french bakery, le reve, for coffee and pastries on the patio.<br />
am is getting a taste for the finer things early :)<br />
<br />
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<div class="separator" style="clear: both; text-align: center;"></div><div class="separator" style="clear: both; text-align: center;">anyone else think my husband's smile is just scrumptiousness</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQJ7RKGim5V-SjHcq6KtH-u5alYgMo3v55M8CG1ZFrKXIYf5XgqmHqwfiJ4J33FvTiDs3keH3SpmgC9QSA3uvJFSPawLBk9XEa3YBaZ5tEJ2mmCwmpP0m3Szz9yFg-Am9dKNFKy4fbvzYc/s1600/AFG3.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQJ7RKGim5V-SjHcq6KtH-u5alYgMo3v55M8CG1ZFrKXIYf5XgqmHqwfiJ4J33FvTiDs3keH3SpmgC9QSA3uvJFSPawLBk9XEa3YBaZ5tEJ2mmCwmpP0m3Szz9yFg-Am9dKNFKy4fbvzYc/s640/AFG3.jpg" width="426" /></a></div><div class="separator" style="clear: both; text-align: center;"><br />
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</div>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com3tag:blogger.com,1999:blog-175715693325463539.post-50379525838402090662011-06-13T15:30:00.000-07:002011-06-13T15:57:18.144-07:00free at last, free at last!amelie is sprung! actually we were discharged yesterday afternoon. but since getting home i have been curled up in a ball with stomach pain -- i think all the fears, emotions, and exhaustion i wasnt allowing myself to feel in the hospital crashed down pretty quickly. im starting to feel human again tho, and more importantly am is doing great!<br />
<br />
we had a sort of crash discharge because they brought the baby in the next bed back from isolation and then began saying things like 'mega dose of broad spectrum antibiotics'and 'sensitivity tests' to her mother to describe what they were doing.<br />
after that we started on a campaign to get am out within the hour. unfortunately, it took most of the day to get the dr in to make the call. fortunately, we had an awesome nurse who fought for us and i think was the reason the dr let us go.<br />
overall our experience at childrens was great, but i am hoping they send me a survey so i can 'voice my concern' over them putting a baby who had a bacterial infection with heart rates over 200 and a temp of 103 back in the room with my girl who has a 6" open incision in her chest, as well as, a couple of lines still in! i was paranoid and wiped everything down with the toxic saniwipes and everyone was very good about gelling in and out, but we spent enough time in the NICU and ICSU to see how quickly things can spread.<br />
<br />
anyhow, enough of my rant... we are overjoyed to have our girl back where she belongs and still in shock that was got out so quickly and without any major complications!!!!!<br />
am will be restricted in her movement and we need to be careful about how we pick her up for the next 6 weeks so that her sternum can heal properly and doesnt crack back open. the dr was of the opinion she would self-limit, and we were like, uh... she's german, i dont think self-limiting translates...<br />
she has already been trying to eat her feet and turn over today. i am sure she will be trying to crawl by tomorrow -- we are in for a fun 6 weeks of forced limitation i believe :)<br />
<br />
we are not totally in the clear with am, her least echo showed a bit of a backleak in one of her valves, but that is common and something we will just have to watch -- worst case scenario they would have to re-open her, but that shouldnt be for many years to come.<br />
<br />
<div class="separator" style="clear: both; text-align: center;"></div>have to say a big thank you to everyone again for all the prayers, good thoughts, help with max, meals, snacks, and magazines brought over, visiting and supporting us though what i hope was the most difficult period in our lives -- there's no real way to express how much that all meant to us!<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiAOpxvSm7YmCu_98ofQm2yMMsMBrZRGnw4BLkkR0lp0ziUhbtAOnRoY5CCziwcWVZo-AXdLUeja7bZCcAMrfTvl0eniAuqYwgrPOerQCq8YBqHHp54TqpJi9wBeF-BG-tGXEE1GKPhtVT0/s1600/AF01.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiAOpxvSm7YmCu_98ofQm2yMMsMBrZRGnw4BLkkR0lp0ziUhbtAOnRoY5CCziwcWVZo-AXdLUeja7bZCcAMrfTvl0eniAuqYwgrPOerQCq8YBqHHp54TqpJi9wBeF-BG-tGXEE1GKPhtVT0/s640/AF01.jpg" width="640" /></a></div><div class="separator" style="clear: both; text-align: center;">home</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3D2AZXVcQmrM6svEUW77SdBXUmFeLahkQBNpfBCxj4tQKH2ErL1Ll1MgO2T-Fw8bMSba1LVNrPtVByefhe3pBnaIqF1CVSZhmdqrBHBREkRhphrdG_335_3RYRk9mBXBk1VEmrmzPtmQ1/s1600/Af7.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3D2AZXVcQmrM6svEUW77SdBXUmFeLahkQBNpfBCxj4tQKH2ErL1Ll1MgO2T-Fw8bMSba1LVNrPtVByefhe3pBnaIqF1CVSZhmdqrBHBREkRhphrdG_335_3RYRk9mBXBk1VEmrmzPtmQ1/s640/Af7.jpg" width="640" /></a></div><div class="separator" style="clear: both; text-align: center;">down to just the leads</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhAH3agHoi9b5gCLiz_XsTOPzQDBJZkN8bCFYVBNnEzmlycLRedc-6_k7YevzlbXJ9V0CUnkQZQy5JV6pw1RojNNcFX-cYIS8tbBhDwh03W3AjOrrTmxYWfVdsa_zuT2RKjuNRqDPV_Wtpi/s1600/Af1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhAH3agHoi9b5gCLiz_XsTOPzQDBJZkN8bCFYVBNnEzmlycLRedc-6_k7YevzlbXJ9V0CUnkQZQy5JV6pw1RojNNcFX-cYIS8tbBhDwh03W3AjOrrTmxYWfVdsa_zuT2RKjuNRqDPV_Wtpi/s640/Af1.jpg" width="640" /></a></div><div class="separator" style="clear: both; text-align: center;">no more wires :)</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHP7uvEjaJQmQBdmgxk1c5znM3SjBe_9HD9qZwc0XN4u1p6jZua_tI_u63YBTqT7mnphiKEarUSjyi6VwA767V1U3R0rMPxvhJGuyPRqymljGGgQ50OaEwLYm3S1JvD69dkbciNi337OKV/s1600/AF3.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHP7uvEjaJQmQBdmgxk1c5znM3SjBe_9HD9qZwc0XN4u1p6jZua_tI_u63YBTqT7mnphiKEarUSjyi6VwA767V1U3R0rMPxvhJGuyPRqymljGGgQ50OaEwLYm3S1JvD69dkbciNi337OKV/s640/AF3.jpg" width="640" /></a></div><div class="separator" style="clear: both; text-align: center;"><br />
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</div>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com5tag:blogger.com,1999:blog-175715693325463539.post-54217058105278240182011-06-11T20:01:00.000-07:002011-06-13T14:58:28.694-07:00really people? really people? are you seriously subjecting me to this?<br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcX9qhDhwgimItF6yfeY0a1jd2g3lT9h2r5H1nekvE48r7JLpY0VLYLGSdUMkhvFcyD0Pltle-IegB_o6RUaQZmDruJCoKbAlQlEGhweBnR7-1vNz5uWqji-alameoX6SjqmeqFMnrHC2N/s1600/AF6.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcX9qhDhwgimItF6yfeY0a1jd2g3lT9h2r5H1nekvE48r7JLpY0VLYLGSdUMkhvFcyD0Pltle-IegB_o6RUaQZmDruJCoKbAlQlEGhweBnR7-1vNz5uWqji-alameoX6SjqmeqFMnrHC2N/s640/AF6.jpg" width="640" /></a><br />
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today was a big day in the dupuis household. d sort of incidentally graduated from UW!<br />
he had enough credits from completing the pre-reqs for dental school that he figured, why not?<br />
unfortunately, i didnt feel like it could leave am that long so didnt make it, but 'uncle chad' went and auntie anouk was a saint and, yet again, took care of our boy.<br />
<br />
am had a good day today. she stopped vomiting, is only on tylenol and her heart meds, and is regaining energy. the big thing for me is that she started smiling and talking to everyone again -- i feel like i have my girl back :)<br />
we had a curmudgeon card resident this am that didnt want to take am off the continuous drip feeding pump and said, well maybe you can take her home next week. i told her that wasnt good enough, that i wanted her back on gavage and bottle feeding and wanted to try to take her home tomorrow or monday at the latest... hoping i can make that happen!<br />
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am was excited about the pomp and circumstance<br />
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<div class="separator" style="clear: both; text-align: center;"></div> she pulled her tube out yet again. i think its a good sign she's ready to get back to the ushe<br />
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thought i should give the boy some equal photo love<br />
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</div>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com1tag:blogger.com,1999:blog-175715693325463539.post-10121443799867894512011-06-10T19:49:00.000-07:002011-06-10T19:49:00.072-07:00busy busy busy beeam had a busy day today starting with a 5 am chest xray, then the morning pokes and prods, then violet vomiting, then ekg, then violent vomiting, then blood draw for labs, more violent vomiting, removal of her chest drain and pacing wires, (yey) then we found out her ng tube had been placed too deep and was going into her duodenum so replaced that in hope of stopping violent vomiting, consult with feeding specialist/ fitting for wedge, then visit from big bro max, then echo, another consult with feeding, then rounds and consults with cardiologists, then more exams, more poking and prodding, now is shift change and lots of commotion with the baby in the next bed spiking a high fever so they are putting her in isolation -- that doesnt make me feel good.... hopefully soon things will settle down and my tired girl can get some sleep....<br />
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</div><div class="separator" style="clear: both; text-align: center;">echo time</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhgZ6BG9tzomBRnH1gmJLPto0GXe0NcXhORjNv8ar-EDlHMOvNIVDZJi4gOjoM9BIR3e1_J-QJWPP7VuiOAuvKUtLk_-wVt3eYgofNfB3zNAKyrZ9guBs_7IYS9QBj7Gcx0m6iRzz-FUN-n/s1600/AF1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="428" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhgZ6BG9tzomBRnH1gmJLPto0GXe0NcXhORjNv8ar-EDlHMOvNIVDZJi4gOjoM9BIR3e1_J-QJWPP7VuiOAuvKUtLk_-wVt3eYgofNfB3zNAKyrZ9guBs_7IYS9QBj7Gcx0m6iRzz-FUN-n/s640/AF1.jpg" width="640" /></a></div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;">the 'fafaffe dance<br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQnTcHoJOtRL3GkVTZLwDUbGkkI-_r85Btphyphenhypheny_HjWC3cHv7bVFBKtwAX0Dz421wnuYWRRQs6xche4lNLluNEvfZw30ImIMJKIycoY6I9LnpvvOb7wO6zJitHy9QvyyHUJi4xS_nDTcapR/s1600/AF2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQnTcHoJOtRL3GkVTZLwDUbGkkI-_r85Btphyphenhypheny_HjWC3cHv7bVFBKtwAX0Dz421wnuYWRRQs6xche4lNLluNEvfZw30ImIMJKIycoY6I9LnpvvOb7wO6zJitHy9QvyyHUJi4xS_nDTcapR/s640/AF2.jpg" width="400" /></a></div><div class="separator" style="clear: both; text-align: center;"><br />
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</div><div class="separator" style="clear: both; text-align: center;">ams new digs</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDUgLs5A_VBOZkFjU8YshQAHVmmL11XohpfjUix0kL3FpbK0OEwbzv4CZrD7j-WGZb2y_rLxr7Ev1xj_oMSMny4pNmFx9IQ0oKBRQISJxoYPqXSrWwj18gqH2dnDJPCvXCqNPnjd4aVSr8/s1600/AF5.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDUgLs5A_VBOZkFjU8YshQAHVmmL11XohpfjUix0kL3FpbK0OEwbzv4CZrD7j-WGZb2y_rLxr7Ev1xj_oMSMny4pNmFx9IQ0oKBRQISJxoYPqXSrWwj18gqH2dnDJPCvXCqNPnjd4aVSr8/s640/AF5.jpg" width="640" /></a></div><div class="separator" style="clear: both; text-align: center;"><br />
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</div>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com3tag:blogger.com,1999:blog-175715693325463539.post-62855326597615825032011-06-09T16:26:00.000-07:002011-06-09T16:26:29.965-07:00hallelujah brother joe!had to update one more time today to say amelie actually took down 30ccs from a bottle like a champ!<br />
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i dont think anyone other than a heart parent will understand the significance of this, but suffice it to say we have been working on this issue for the past 4 months -- it almost made me cry as much as when they took her back for surgery!<br />
im sure it will still be a long road to get her completely bottle feeding, but just the fact that she sincerely wanted the bottle and wasnt showing any signs of aspirating is so incredibly encouraging and something we were hoping the OHS would help with -- this is pretty miraculous folks :)<br />
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</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjnEIzmj1KR268TFwVanz7xwP9UpjkeWNgWwRv9QWLOtEaqOCSS4vOphz5-1hwmdRQoBGO1TNgQLDA4woD6dCBSV4hAGF2pIxHTR8gAFxnTTYstDHlCDeg7sOx0hpqOHGF9wNhrLNd-Uhxu/s1600/AF1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjnEIzmj1KR268TFwVanz7xwP9UpjkeWNgWwRv9QWLOtEaqOCSS4vOphz5-1hwmdRQoBGO1TNgQLDA4woD6dCBSV4hAGF2pIxHTR8gAFxnTTYstDHlCDeg7sOx0hpqOHGF9wNhrLNd-Uhxu/s640/AF1.jpg" width="640" /></a></div><div class="separator" style="clear: both; text-align: center;"><br />
</div>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com4tag:blogger.com,1999:blog-175715693325463539.post-32118604245116157572011-06-09T14:03:00.000-07:002011-06-09T14:09:06.225-07:00step down progressthis morning am got a few more tubes out and we got to bring her down to the surgical care wing, yey!<br />
they stopped the morphine so i think she has been in a bit of pain and has been fussy all morning,<br />
we were able to avoid the pacemaker last night. she still has the wires in, but i think the risk of her having to go on the pm has decreased considerably.<br />
we just got to feed her, dress her in a little gown, and wrap her in a blanket so she is sleeping pretty peacefully for the time being :)<br />
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we are hesitant to count our chickens, but one of the cardiac nurses mentioned if am keeps on this track, she might be able to go home by sunday.... as i was preparing myself for a month long stay, anything less than a week would be a miracle in my eyes ;)<br />
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finally got to hold my girl again!<br />
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</div><div class="separator" style="clear: both; text-align: center;">pretty dress</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQpmnQbqPzvnzWZFHcCZqbgdaEmYioAxuw1LitkR3MQn88WFxrLDg5UpykjCR-Mxt0JKjV8s5R6v9Z16-FBGXgZM6YSWir1wgyr-O01YhzA5LE8s-znw52EsjUrZvfRl5EPjB6tuo52hE-/s1600/AF5.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQpmnQbqPzvnzWZFHcCZqbgdaEmYioAxuw1LitkR3MQn88WFxrLDg5UpykjCR-Mxt0JKjV8s5R6v9Z16-FBGXgZM6YSWir1wgyr-O01YhzA5LE8s-znw52EsjUrZvfRl5EPjB6tuo52hE-/s640/AF5.jpg" width="640" /></a></div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;">reaching for daddy</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhovWUGwBm40zGNxRhqoVaowYU3FMCyKcK29dk6vcIzeo5mrAC3vK4DSaW71OHRc8gOWwp0-mgYhKvlZFVkOyiQxSw2Tqa9GzKNWseA6fd7G-9-f3Y7Ex-P2fUvpvn6ce864k8gqG4DmoL2/s1600/AF3.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhovWUGwBm40zGNxRhqoVaowYU3FMCyKcK29dk6vcIzeo5mrAC3vK4DSaW71OHRc8gOWwp0-mgYhKvlZFVkOyiQxSw2Tqa9GzKNWseA6fd7G-9-f3Y7Ex-P2fUvpvn6ce864k8gqG4DmoL2/s640/AF3.jpg" width="640" /></a></div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;">where's waldo?</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjSfQCM1g5JnA2sVOXsB_n0ORIRDGffxeQnZD1zXYhn80Hx4V68JQkR0IVLDFgPEvn50BJIkcrnpo_aYLZ5PnygX68BR2h1-oebZ9QvnMYjRXvYOr2h7R-vTAN4-fTMZZ1yPYQUJPis_Jjl/s1600/AF4.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjSfQCM1g5JnA2sVOXsB_n0ORIRDGffxeQnZD1zXYhn80Hx4V68JQkR0IVLDFgPEvn50BJIkcrnpo_aYLZ5PnygX68BR2h1-oebZ9QvnMYjRXvYOr2h7R-vTAN4-fTMZZ1yPYQUJPis_Jjl/s640/AF4.jpg" width="640" /></a></div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;">not happy about this here situation</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjqPZ9VTFnU-61EkJqYx6-2eoK2CHPUoFlnofHq_TmdCM9JcSl_zBfrnfGqVYRLv0WEKLwWv3iZ5RE3kFlU_RuI3P0e0G49_JMllyZNG6OQY33T2pPegrrYOThJEqcQq-uY3DwNDy3mIimC/s1600/Af2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjqPZ9VTFnU-61EkJqYx6-2eoK2CHPUoFlnofHq_TmdCM9JcSl_zBfrnfGqVYRLv0WEKLwWv3iZ5RE3kFlU_RuI3P0e0G49_JMllyZNG6OQY33T2pPegrrYOThJEqcQq-uY3DwNDy3mIimC/s640/Af2.jpg" width="640" /></a></div><div class="separator" style="clear: both; text-align: center;"><br />
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</div>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com2tag:blogger.com,1999:blog-175715693325463539.post-42893998791499016842011-06-08T21:25:00.000-07:002011-06-08T21:56:38.946-07:00extubated hoorah, and a couple shouts outs!about an hour ago they extubated am -- hoorah, hooray!<br />
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this is a big deal because the longer that tube was in the more risk she had of infection and intubation induced pneumonia, and i think ams handling the extubation was d's biggest fear as it took so many tries and was so difficult for them to extubate me -- i think am learned from my mistakes :)<br />
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her blood pressure and heart rate are a little wonky right now because during surgery she had 1st degree heart block, (a disruption in the electrical system) so there are a lot of alarms going off, and she may need to go on an external pacemaker to regulate that...<br />
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just want to end the day by saying thank you so much to everyone for keeping am and us in your thoughts and prayers --we are so appreciative and know its made a huge difference in how the surgery went and her recovery so far.<br />
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also, a HUUUUGE shout out to the courtades for taking such good care of our boy so we could fully concentrate on our girl, as well as, filling our refrigerator for the week -- you guys are the best! to the millers for the super thoughtful gowns for am, the OS girls for the surprise visit, and to auntie alyson for her wonderful distraction abilities, her questioning nature, and all around great friendship -- love you guys!<br />
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he said she had enough tissue in the septum that he was able to use that to patch her up and did not have to use and cadaver patches. he also said her valves looked great -- very encouraging!<br />
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<div class="separator" style="clear: both; text-align: center;"></div>she is in recovery in her CICU room now and daniel, and i, and aunty alyson are sitting bedside marveling at how great she looks :)<br />
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</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_0ETu_LHjMFNOWa-khq_miQv6hqI5PE2qSsvJaZ_xzk2OOeM0NlmwiJS5rKnAd4vuTiHNrviKj7Wpquiy5P1LHU7OZWiTLE8eOb53w7K98TG7dzndFOGjbeRKd8hdlYN_Qq9nNQZbhV8D/s1600/IMG_1187.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_0ETu_LHjMFNOWa-khq_miQv6hqI5PE2qSsvJaZ_xzk2OOeM0NlmwiJS5rKnAd4vuTiHNrviKj7Wpquiy5P1LHU7OZWiTLE8eOb53w7K98TG7dzndFOGjbeRKd8hdlYN_Qq9nNQZbhV8D/s640/IMG_1187.JPG" width="640" /></a></div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiTSQmNgCxISa_rQMOL9-5ASadtmhJTLfbqRODi9alE3EZ9okRPsY7lKKSez20Nsf86QSFlrymn0oVsB1DWlC6F8BdW-XhY384YNcrEqoeGYB-EsAwvysQzR8_fVXcASXLaPTwiUWTgzPWP/s1600/IMG_1190.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="426" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiTSQmNgCxISa_rQMOL9-5ASadtmhJTLfbqRODi9alE3EZ9okRPsY7lKKSez20Nsf86QSFlrymn0oVsB1DWlC6F8BdW-XhY384YNcrEqoeGYB-EsAwvysQzR8_fVXcASXLaPTwiUWTgzPWP/s640/IMG_1190.JPG" width="640" /></a></div>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com11tag:blogger.com,1999:blog-175715693325463539.post-24640394224257020982011-06-08T12:02:00.000-07:002011-06-08T12:03:22.107-07:00on the bypass!running a bit behind, but they updated us that she went on the bypass at about 10:30am and just came in again and said she was off already..... we are hoping that's a good thing...<br />
surgeon should be in 45 mins to an hour to give an update as well.<br />
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heres some pics of arrival and prep this am :)<br />
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</div>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com7tag:blogger.com,1999:blog-175715693325463539.post-18486070304391714792011-06-07T21:20:00.001-07:002011-06-07T21:20:47.254-07:00signs are always good<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgP5WIb9uj63PjIWZ3J6wrVdpexxWGm3zhm94ZMBwBNyji7VkZ9UAnXf4YrERagKKAt7ByMugetoD_Ffdcoy4tBzZuyBIlcphVA-hm9SvnJwhS-y-VOJyAtaKD83ueryTekITFrVcDVX6hE/s1600/ChildSign.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="498" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgP5WIb9uj63PjIWZ3J6wrVdpexxWGm3zhm94ZMBwBNyji7VkZ9UAnXf4YrERagKKAt7ByMugetoD_Ffdcoy4tBzZuyBIlcphVA-hm9SvnJwhS-y-VOJyAtaKD83ueryTekITFrVcDVX6hE/s640/ChildSign.jpg" width="640" /></a></div>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com0tag:blogger.com,1999:blog-175715693325463539.post-11407727238555159882011-06-07T21:12:00.000-07:002011-06-07T21:21:46.975-07:00a few quick pre-op (scarless) pics from today<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfYucIWdvtUg5xPgO9cI0j3fS6BzZSnrs573gYmyGf-ovgV13e7bO4Af7ukLdWWZ7REdEYTlhEPMUNEEUUKf_NhEX809jQoFwHFqhBxrxn7Y2XrlNgAxi7yknKBraoBj1sg98PbF9N-tgC/s1600/AF7.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfYucIWdvtUg5xPgO9cI0j3fS6BzZSnrs573gYmyGf-ovgV13e7bO4Af7ukLdWWZ7REdEYTlhEPMUNEEUUKf_NhEX809jQoFwHFqhBxrxn7Y2XrlNgAxi7yknKBraoBj1sg98PbF9N-tgC/s640/AF7.jpg" width="426" /></a></div><div class="separator" style="clear: both; text-align: center;"><br />
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</div><div class="separator" style="clear: both; text-align: center;"></div>sarahhttp://www.blogger.com/profile/11119032756364295102noreply@blogger.com2