busy busy busy bee

am had a busy day today starting with a 5 am chest xray, then the morning pokes and prods, then violet vomiting, then ekg, then violent vomiting, then blood draw for labs, more violent vomiting, removal of her chest drain and pacing wires, (yey) then we found out her ng tube had been placed too deep and was going into her duodenum so replaced that in hope of stopping violent vomiting, consult with feeding specialist/ fitting for wedge, then visit from big bro max, then echo, another consult with feeding, then rounds and consults with cardiologists, then more exams, more poking and prodding, now is shift change and lots of commotion with the baby in the next bed spiking a high fever so they are putting her in isolation -- that doesnt make me feel good.... hopefully soon things will settle down and my tired girl can get some sleep....

echo time

the 'fafaffe dance

ams new digs


  1. I'm so glad she's doing so well. Sounds like a whirlwind of a day. Hang in there... every appointment completed is hopefully one less to come. Can't wait for you to bring that little rockstar home! : ) Keep up the good work Amelie. Max is such a cute mini dude. When he was here last, he was holding a giraffe toy and saying faffafe. Too cute. Chat soon!

  2. Sigh...I remember these scenes all too well. My middle son had OHS in Oct 2008 when he was five months old. He is now three and doing just fine heart-wise. Your children are precious!!
    P.S. For some reason Blogger is not letting me leave comments under my Google account!! But my blog is www.theamicks-angela.blogspot.com

  3. I hope each day just gets easier and easier. I'm glad to hear she's doing so well. You guys are amazing!

    (this is Kris Holman)