6.13.2011

free at last, free at last!

amelie is sprung! actually we were discharged yesterday afternoon. but since getting home i have been curled up in a ball with stomach pain -- i think all the fears, emotions, and exhaustion i wasnt allowing myself to feel in the hospital crashed down pretty quickly. im starting to feel human again tho, and more importantly am is doing great!

we had a sort of crash discharge because they brought the baby in the next bed back from isolation and then began saying things like 'mega dose of broad spectrum antibiotics'and 'sensitivity tests' to her mother to describe what they were doing.
after that we started on a campaign to get am out within the hour. unfortunately, it took most of the day to get the dr in to make the call. fortunately, we had an awesome nurse who fought for us and i think was the reason the dr let us go.
overall our experience at childrens was great, but i am hoping they send me a survey so i can 'voice my concern' over them putting a baby who had a bacterial infection with heart rates over 200 and a temp of 103 back in the room with my girl who has a 6" open incision in her chest, as well as, a couple of lines still in!  i was paranoid and wiped everything down with the toxic saniwipes and everyone was very good about gelling in and out, but we spent enough time in the NICU and ICSU to see how quickly things can spread.

anyhow, enough of my rant... we are overjoyed to have our girl back where she belongs and still in shock that was got out so quickly and without any major complications!!!!!
am will be restricted in her movement and we need to be careful about how we pick her up for the next 6 weeks so that her sternum can heal properly and doesnt crack back open. the dr was of the opinion she would self-limit, and we were like, uh... she's german, i dont think self-limiting translates...
she has already been trying to eat her feet and turn over today. i am sure she will be trying to crawl by tomorrow -- we are in for a fun 6 weeks of forced limitation i believe :)

we are not totally in the clear with am, her least echo showed a bit of a backleak in one of her valves, but that is common and something we will just have to watch -- worst case scenario they would have to re-open her, but that shouldnt be for many years to come.

have to say a big thank you to everyone again for all the prayers, good thoughts, help with max, meals, snacks, and magazines brought over, visiting and supporting us though what i hope was the most difficult period in our lives -- there's no real way to express how much that all meant to us!


home
down to just the leads
no more wires :)






5 comments:

  1. I'm overjoyed that Am is doing so well and that you guys are home. Already! Well done! I hope that, when the time comes, our journey will be as smooth as yours.Am has given us great hope & strength!!!

    All the best,

    Marija

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  2. So happy to hear that Amelie is home safe and sound! She's such a beautiful little fighter.

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  3. WHAT A MIRACLE AMELIE IS! WE'LL KEEP PRAYING FOR COMPLETE RECOVERY AND STRENGTH FOR HER AND MOM!
    LOV CHERI MAEDING(VCC PRAYER LINE)

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  4. We are so happy that Amelie is home. Please let us know if your family needs anything.

    Tim and Amy Miller

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  5. I'm still amazed and joyous over how quickly little Amelie has recovered! She continues to be an amazing little girl! :)

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